Definition
De-identification is the process of removing personally identifiable information such as names, social security numbers, and street addresses from records or a dataset. (See Further Resources below for information on other examples of personally identifiable information and protected health information.) De-identification is typically done when preparing data for sharing in order to help prevent others from identifying individuals based on their participation in a research study. Sharing health information publicly can cause harm to individuals, and patient information is protected by laws such as The Health Insurance Portability and Accountability Act (HIPAA), making de-identification a very important step in preparing data for sharing.
Similar Terms
NLM-Scrubber is a freely available clinical text de-identification tool designed and developed at the National Library of Medicine. https://lhncbc.nlm.nih.gov/scrubber/
Relevant Literature
- Guidance Regarding Methods for De-identification of Protected Health Information in Accordance with the Health Insurance Portability and Accountability Act (HIPAA) Privacy Rule: https://www.hhs.gov/hipaa/for-professionals/privacy/special-topics/de-identification/index.html
- Guide to Identifying Personally Identifiable Information (PII): https://www.technology.pitt.edu/help-desk/how-to-documents/guide-identifying-personally-identifiable-information-pii
- Key Differences Between PHI and PII, How They Impact HIPAA Compliance: https://healthitsecurity.com/news/key-differences-between-phi-and-pii-how-they-impact-hipaa-compliance